Thursday, July 31, 2008
Karina's First Vacation
We just returned home from spending some much needed family time in Cape May. We had a great time together. Karina was a trooper through it all, even after being stuck in heavy traffic! Here are some pictures from our stay.
Fundraiser Dinner Update
Looks like the benefit dinner ticket sale is a huge success! We have SOLD OUT all of the tickets. What an amazing response. We cannot thank everyone enough for the show of support.
For those of you that have wanted to come but have not yet purchased a ticket, please still contact Lina Russo and leave your name as a reserve. We are taking a limited amount of reserves so please call soon.
Again, thank you all so much for the tremendous show of support. We are deeply touched.
For those of you that have wanted to come but have not yet purchased a ticket, please still contact Lina Russo and leave your name as a reserve. We are taking a limited amount of reserves so please call soon.
Again, thank you all so much for the tremendous show of support. We are deeply touched.
Wednesday, July 16, 2008
Love Karina T-shirt For Sale
We will be selling t-shirts at the upcoming benefit dinner this September for Karina. If you would like to purchase one, please contact Lina Russo @ loulina123@aol.com
Here is what the t-shirt design will look like.
Here is what the t-shirt design will look like.
Tuesday, July 15, 2008
Fundraiser Dinner for Karina
There will be a Fundraiser Tricky Tray for Karina on September 18, 2008, which also coincides with Mitochondrial awareness week. It will be held at the American Legion on Union Blvd. in Totowa, NJ from 7:00 p.m. until 10:30 p.m. The price is $40.00 for adults and $20.00 for children under 12. For more information or to purchase tickets, please contact Lina Russo (Karina's aunt & Godmother) at 973-595-9210, or email loulina123@aol.com.
Monday, July 14, 2008
Love Karina
My name is Fernando and my wife is Melissa, and we have a beautiful daughter named Karina Alessia. Karina was born on September 5, 2007 at the Valley Hospital in Ridgewood, New Jersey. She weighed in at 6lbs 5ozs and 19 1/2 inches tall.
After a few days, we brought Karina home to join her sister Arianna for what we considered to be our completed family. Arianna is 4 and she has taken to Karina with such caring and love. She is just wonderful with her. We've always wanted two children and we could not be happier with Karina's arrival.
After 2 weeks at home, Karina began to cry excessively. Melissa's motherly intuition thought that something was definitely not right about the way Karina cried.
We took Karina to her pediatrician and the doctor told us that Karina was probably suffering from acid reflux - common in many newborn babies. She prescribed some medication and off we went, back to what we thought was going to be normalcy.
Another few weeks passed and Karina's acid reflux did not get any better. She also started to make abnormal movements which appeared seizure-like. She was also not meeting her developmental milestones. We decided the best thing to do was to bring her to the emergency room. Our lives would forever change that night and our nightmare began.
After many days in the hospital and numerous tests, we were told that Karina may be suffering from mitochondrial disease.
We had never heard of mitochondrial disease and we did not know what to expect. The doctors still cannot tell us for certain what her prognosis will be, so we are taking things day by day and praying that she will have as normal a life as possible.
We created this blog as a way to communicate with family and friends and keep them up-to-date on how Karina is doing.
It is also our hope that we can bring awareness to this rare disease and offer some support to other families going through a similar situation.
After a few days, we brought Karina home to join her sister Arianna for what we considered to be our completed family. Arianna is 4 and she has taken to Karina with such caring and love. She is just wonderful with her. We've always wanted two children and we could not be happier with Karina's arrival.
After 2 weeks at home, Karina began to cry excessively. Melissa's motherly intuition thought that something was definitely not right about the way Karina cried.We took Karina to her pediatrician and the doctor told us that Karina was probably suffering from acid reflux - common in many newborn babies. She prescribed some medication and off we went, back to what we thought was going to be normalcy.
Another few weeks passed and Karina's acid reflux did not get any better. She also started to make abnormal movements which appeared seizure-like. She was also not meeting her developmental milestones. We decided the best thing to do was to bring her to the emergency room. Our lives would forever change that night and our nightmare began.After many days in the hospital and numerous tests, we were told that Karina may be suffering from mitochondrial disease.
We had never heard of mitochondrial disease and we did not know what to expect. The doctors still cannot tell us for certain what her prognosis will be, so we are taking things day by day and praying that she will have as normal a life as possible.
We created this blog as a way to communicate with family and friends and keep them up-to-date on how Karina is doing.
It is also our hope that we can bring awareness to this rare disease and offer some support to other families going through a similar situation.
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